The International Rare Disease Day was celebrated on 28.02.2017 for the first time in Shumen, with the active participation of students and lecturers from Affiliate-Shumen at MU-Varna.
First-year students, majoring in Nursing at Affiliate-Shumen and their lecturers, together with the National Alliance of People with Rare Diseases, organized a campaign among the citizens of Shumen, which involved distribution of information materials. As a token of solidarity the participants raised and joined their hands at 1:00 p.m. sharp, which is done at the same time everywhere in Europe. They also released multicolored balloons, symbolizing the thousands of types of rare diseases.
The Director of the Affiliate Prof. Sonya Toncheva was awarded with an Honorary Diploma “Noble Heart” for her support and cooperation in organizing and conducting the Seminar on Rare Diseases “To Add Life”. The award was presented by the Chairperson of the National Alliance of People with Rare Diseases Mr. Vladimir Tomov.
The initiative, organized by the European Patient Platform EURORDIS, was held for the first time in 2008, aimed at raising public awareness for the issues related to rare diseases in the European Union.
Once again this year the day was celebrated in more than 100 countries (EU, the USA, China, Japan, Canada, Australia, Brazil, etc.) in order to give voice to the pressing issues. The main task of the National Alliance of People with Rare Diseases is to promote and introduce the generally accepted European values in Bulgaria – universality, access to good quality care, equity and solidarity.